tag:blogger.com,1999:blog-7724669797603824777.post1855673186434202728..comments2024-02-15T04:09:54.845-08:00Comments on organicgreendoctor: my story-final answer part twoorganicgreen doctorhttp://www.blogger.com/profile/10257781130090757606noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-7724669797603824777.post-88050933865261318042012-08-05T05:22:41.892-07:002012-08-05T05:22:41.892-07:00thanks for reading the blog
once a week especially...thanks for reading the blog<br />once a week especially on fridays i try to write on something to do with alzheimers<br />the rest of the time i write on other things as it helps to not just write about this all the time<br /><br />the adni2 study im in doesnt restrict me from using other things it only asks that i let them know when i use something else as this is all followed by the study<br /><br />i am on aricept and yes it has side effects that i decided to accept as right now its the only proven thing that can help slow down the symptoms and even then it doesnt work on everyone<br /><br />i understand that when i take it every morning that i may be taking something that does me no good but i do know that in the last 2 years there has been no progression in my symptoms <br />i know that personally and from the neuropsych exams that i take regularly while on the study<br /><br />i took axona for awhile but decided that hear was what i was going to do <br />i would definitely do those things that have been proven to work by scientific research and i for my self was taking a lot of other things that might help but were not proven such as vit d cumin omega 3 the axona but i got tired of piling all that up in the morning and taking it <br /><br />personally i think only the aricept helps and the other stuff probalby doesnt in the long run do much good<br />i also know that aricept if it is working in me will soon not be working <br /><br />i feel like that these things probably have more effect on the disease than those supplements<br />exercise mental activity social interaction proper diet proper diet perfect control of blood pressure cholesterol weight and diabetes<br /><br />until that magic pill shows up this is what i am going to go<br /><br />soon i and everyone else in my situation will be able to as definitely as can be know whether what they have is alzheimers or not<br />blood tests which im having with the study pet scans of the brain for beta amyloid etc<br />i hope soon to know for sure if what i have is alzheimers or not<br />until that happens im doing the above<br /><br />that said there is no harm that im aware of of doing those things you mention above<br /><br />thanks again for reading and commenting on this blog<br /><br />the ogdorganicgreen doctorhttps://www.blogger.com/profile/10257781130090757606noreply@blogger.comtag:blogger.com,1999:blog-7724669797603824777.post-64905501792007009382012-08-04T06:45:59.856-07:002012-08-04T06:45:59.856-07:00I have just discovered your blog this morning and ...I have just discovered your blog this morning and will follow along. I admire what you are doing here. I am my mother's caregiver, and an avid researcher (amateur) of medical alternatives. My mother has done very well considering she was first diagnosed with Alzheimer's 10 years ago. Both her brother and her sister died of it within 4 years of their diagnoses.<br /> <br />For my mom, we took her off of Aricept after the first year and replaced it with the herb galantamine. As I'm sure you know, galantamine was synthesized into the drug Reminyl, subsequently named Razadyne. Our belief is that the natural herb galantamine is better, and also tolerated more easily by the body. Galantamine performs exactly like Aricept in its function of assisting acetylcholine levels, but has an additional function of binding to nicotinic receptors. We buy it ("Galantamind Plus") from the Life Enhancement company, where you can find extensive information. My mom actually experienced improvement for a while after we made the switch, and I am convinced her subsequent decline has been very greatly slowed down. At this 10 year point, although her memory is very short-term now, she is still totally verbal, dresses and bathes herself, and is very high functioning.<br /><br />She has also taken Namenda since it was first approved in the US, and a number of other vitamins/supplements which I can name if you are interested.<br /><br />A more recent discovery we have made is the use of coconut oil for fueling brain cells. I've seen mentioned in your blog that in Alzheimer's disease brain cells lose their ability to use glucose as fuel. If you've heard of the prescription "medical food" Axona, then you know that medium chain triglycerides can be an alternative fuel for brain cells. We tried this with Mom, and although it worked amazingly well for her brain, it made her so sick she couldn't take it anymore. Dr. Mary Newport, whose husband was diagnosed with AD, is bringing to light the fact that good quality, cold-pressed, organic coconut oil is an absolutely wonderful source of medium chain triglycerides and it's working wonders with Alzheimer's patients. This has proven absolutely true with my mom. Dr. Newport has written a book and has videos on YouTube. It is a misconception that coconut oil is an unhealthy saturated fat. That is true of processed hydrogenated coconut oil, but the natural cold-pressed oil has many health benefits.<br /><br />I hope that by being part of a study, you are not prevented from trying different approaches to managing the illness. My highest regards and best wishes to you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7724669797603824777.post-47405946885601212582011-07-25T02:35:56.756-07:002011-07-25T02:35:56.756-07:00dr john
thanks for the information
best practices...dr john<br />thanks for the information <br />best practices involving exercise, controlling lipids, controlling blood pressure, controlling stress, proper sleep habits, proper diet et al may prove to be helpful with this disease<br />togdorganicgreendoctorhttps://www.blogger.com/profile/02739124692214686295noreply@blogger.comtag:blogger.com,1999:blog-7724669797603824777.post-40868586485924992112011-07-24T18:06:37.247-07:002011-07-24T18:06:37.247-07:00Very brave, William. And altruistic too.
I am sorr...Very brave, William. And altruistic too.<br />I am sorry you have had the lab test results you've had, but am glad you've sought the best care you could.<br />I assume, because you're so interested in organics and green living, you've looked at the data about enviromental influence on apoE (especially) expression...I know the data generalized are not great, either in quality or implication, but I can tell that you like individuality, so you might do at least a look-see, and then, possibly a deep-dive: exercise, e.g., changes neuroplasticity : http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3092070/?tool=pubmed<br /><br />Also, you might look at CFIT in Santa Barbara (I live here, but don't have an affiliation with them): Ken Kosik is interested in both early detection and forestalling decline with environmental/lifestyle measures: tell Ken I suggested you contact him: http://www.sbcfit.org/<br /><br />Good luck!<br />JLDr Johnhttps://www.blogger.com/profile/02183653714828087275noreply@blogger.comtag:blogger.com,1999:blog-7724669797603824777.post-3392428651722710762011-07-23T02:23:53.897-07:002011-07-23T02:23:53.897-07:00barbara
thanks for the comment
togdbarbara <br />thanks for the comment<br />togdorganicgreendoctorhttps://www.blogger.com/profile/02739124692214686295noreply@blogger.comtag:blogger.com,1999:blog-7724669797603824777.post-30653046091325665982011-07-22T20:13:32.129-07:002011-07-22T20:13:32.129-07:00It's very brave of you to do this, I for one s...It's very brave of you to do this, I for one salute you and wish you the best in your journey. Most people can't help like this until they are dead. With such a horrible disease, at least you can use it to someone's advantage maybe. God Bless You.Barbarahttps://www.blogger.com/profile/16205300548347150996noreply@blogger.comtag:blogger.com,1999:blog-7724669797603824777.post-26292352966402610762011-07-22T10:09:18.077-07:002011-07-22T10:09:18.077-07:00ttom
i have been diagnosed earlier than most peopl...ttom<br />i have been diagnosed earlier than most people and am a good candidate for research. the scans and spinal taps are part of a very important study being done called the adni-2 study<br /><br />having gone through this with my parents and a sibling its the least contribution i can make to helping in my small way to find a cure and better treatment for this awful disease<br /><br />the aricept is working fine for me with few side effects and for that reason dont feel a change is needed. my relative is on aricept and namenda but the relative is more advanced than i am <br /><br />thanks for the comment<br />togdorganicgreendoctorhttps://www.blogger.com/profile/02739124692214686295noreply@blogger.comtag:blogger.com,1999:blog-7724669797603824777.post-29228518121019058322011-07-22T09:03:54.127-07:002011-07-22T09:03:54.127-07:00I understand thaat you are a doctor but I respectf...I understand thaat you are a doctor but I respectfully request that you consider adding Namenda. I have and it helped me to regain some focus. Plus it fights the disease from a second path like no other medication.Ttomhttps://www.blogger.com/profile/14190988521152870711noreply@blogger.comtag:blogger.com,1999:blog-7724669797603824777.post-23336581215468190112011-07-22T08:57:31.656-07:002011-07-22T08:57:31.656-07:00I have EOAD. Why are you subjecting yourself to re...I have EOAD. Why are you subjecting yourself to recurring PET scans and lumbar punctures?Ttomhttps://www.blogger.com/profile/14190988521152870711noreply@blogger.com