alzheimers news-its my day

ALZHEIMERS NEWS-ITS MY DAY

today is my birthday
i have had a lot of birthdays
the 40th one was memorable
yes i got black stuff and got my yard trashed
i got all those over 40 jokes

then
came number 50
yes i got the aarp stuff in the mail

then
came the number 60
i told my wife she
i just want a quiet one
have people leave me alone
no harassment please
i got enough at age 40 and 50

after my 60th birthday
our life was humming along pretty good
we had no idea what would be coming along
in about 9 months
our lives would change

kabam
there was the diagnosis
that diverted our future to where it is today
an uncertain one

now
i have got a lot of presents over the years
some well most have been good ones
but
yesterday
well
i got the best birthday present ever

my phone rang
hi
this is the alzheimers disease center at ut southwestern
we have an opening tomorrow at our infusion center
do you want to start your aducanumab infusions tomorrow

i didnt even hesitate a second
we have made receiving these infusions our priorty
yes
ill be there
early

im ready
to get this show on the road
the sooner the better

for those who dont know
aducanumab is an antibody that attacks the bad beta amyloid
that accumulates in the brain
beta amyloid is thought to be the substance that causes alzheimers disease
if you remove it
the alzheimers disease may be stopped or at least slowed down

i will be one of the first to get this stuff at the alzheimers center

everyone knows the drug humira
its advertised on tv all the time
its used for diseases like rheumatiod arthirits ulcerative colitis
crohns disease and other connective tissue diseases
its given as shots under the skin usually every 2 weeks
its an antibody against a protein that causes the inflammation in
these diseases
its generic name is adalimumab

my drug
aducanumab
my birthday present today
works similarly
but
the protein it attacks is the bad beta amyloid in the brain

this drug aducanumab
is the best hope that we have right now to slow this disease down
this study i am in will determine if it works or not
my reading and my hope is that it will

so
i am ready
to get the best birthday present ever today
it must be a sign
getting it today on my birthday
i believe
i believe
its a good sign

the organicgreen doctor

bestest birthday ever

BESTEST BIRTHDAY EVER

this is the place that we my wife she and i had our best
birthday celebration we have ever had

my birthday is in march and hers is 3 days after mine
so we usually will do our birthdays celebration together
you know like when your birthday comes near christmas
so you celebrate your birthday and christmas together
and you sort of get screwed in the deal but not really
as every one celebrates as your birthday arrives

so over all its probably a good deal for everyone
involved

so it is and was with our birthdays over the years and
weve enjoyed it this way every year

this year we were blindsided both of us by a surprise
birthday party that was kept secret by a lot of people
who usually cant always keep secrets
(still cant believe there wasnt a leak somewhere)

ive had surprise parties before but you know its coming
as there are whispers and goings on that you recognize as
being different

well this one was masterfully done by my sons my smiley
sweet daughterinlaw and others
including the infamous wet suitcase sisterinlaw of mine
yes masterfully done up to that moment of surprise when
we walked into one of our favorite places to eat in the
austin area
ok it was ztejas

i would show the picture of my wife she  and of myself at the
moment of full impact of the surprise expertly captured on
camera
but if i did my wife she would probably kill me as the photos
will have to be photo shopped some before they can be
published
one person was real worried my wife she would pass out
from the shock
if you saw that picture of her at the impact moment you
would have too
she looked like she would explode all over

lets just say that they definitely showed the degree of surprise
at its highest level

now this birthday for one of us is not one that when you reach
it you want to celebrate and definitely not celebrate with a large
group
well my wife she has reached one of those and i had planned no
such celebration as i had warned her that i 110% did not want
one for myself that year
if she did i would get up and walk away
she agreed and i agreed not to do it to her

well it happened anyway but the fact that it was for both of us
diffused that bad year celebration away for her

it was celebrated with a group of friends and family members that
we would have wanted together at a party at our house

yes

it was the bestest birthday ever

the organicgreen doctor