welcome to the organic green doctor blog

i am a family physician who was diagnosed with
early mild cognitive impairment(mci) amnestic type on december 21, 2010
this is a precursor to alzheimers disease
because of this diagnosis i have opted to stop practicing medicine
this blog will be about my journey with this disease
please feel free to follow me along this path
i will continue blogging on organic gardening, green living,
solar power, rainwater collection, and healthy living
i will blog on these plus other things noted to be interesting

Friday, April 21, 2017

alzheimers news-there is more coming

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yesterday as i was sitting in the lounge chair
getting infusion #2
now its real comfortable and cozy in there
theres a nice large screen tv

i havent watched it much
theres folks in and out of the room
nurses and the research director
talking and asking me questions
sticking in an iv
adjusting the flow rates
adding the unknown stuff thats all hidden under this
dark aluminum looking cover

its a secret i guess whats in there

i may know this time if i get those week long headaches again
if i dont get them
then i dont know either
for those who dont know
folks getting the aducanumab who have the apoe4 apoe4 genes
have a high chance of getting manageable headaches
i want headaches i tell everyone

as i sat there
i thought
please dont ask me
please dont start me talking about alzheimers
about clinical trials
i cant help myself
if you ask me
i go into lecture mode and probably tell you more than
you really want to know
i do adjust what i say  based on who i am talking to
lay person vs medical person

yesterday it was the nurse who took care of me
he was asking about the medicine
i sort of ignored him
i thought
sir you are about to get told a lot more than you wanted to know

he asked again
just like a kid in kindergarten that cant help himself or herself
to answer the teachers question

i blurted it all out
told him the whole aducanumab story

you know he said we do other of these antibody infusions
for these diseases like ms and gastroenterology diseases and
ophthalmology diseases
some experimental some not
i dont think ive done any of these alzheimers one before

do you know about this one
no he said

my kindergarten brain and voice just let it roll out my mouth

well its an antibody against what i call the bad beta amyloid
that is thought to the cause of alzheimers disease
actually this drug may prove or disprove this theory

it removes all of it
yes i said all of it
in the phase 1 study
it removed all of it that showed on the pet brain scan for the
beta amyloid called the amyvid pet scan
zippo nada it was all gone after over a year
folks memory didnt worsen most got better
the goal of a good drug that works

in a year and half when they redo my amyvid pet scan
if i get the real drug aducanumab and not the placebo
my scan will go from being diffusely positive for all that
being all negative being like its all gone from up there

he just looked at me like
well i was lying or something
you arent telling me the truth
that aint so

he said
ive never heard of that before
he had this look of amazement in his face

i must say ive seen that amazement before
from alzheimers research neurologists that i have seen
they added a sparkle and smile to their face
as they talked about it

now we wait
18 months
then all of us will get the real thing
for another 42 months after that

hopefully it will become available for all who
need it

hopefully that is if it really works
it will remove the stuff
memory gets better
and or
at least memory doesnt worsen
that downward slide that occurs with alzheimers disease
get slowed down stretched out so that
we who have it die from something else
enjoying a more memorable life along the way

as i say
my two goals

see my granddaughter graduate from high school
to be one of the first alzheimers disease survivors

so yesterday as i sat there getting my infusion
looking at my alzheimers texas bracelet
i realized
there  just might be some hope now

join us at this alzheimers symposium
i speak first about my story and clinical trials
answer questions the more the merrier
then 3 other speakers will follow

Alzheimer's Texas Symposium

friday april 28th
the mayborn convention center
temple texas

join us
its free
breakfast and lunch are provided
registration is required
click here

the organicgreen doctor

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