welcome to the organic green doctor blog

i am a family physician who was diagnosed with
early mild cognitive impairment(mci) amnestic type on december 21, 2010
this is a precursor to alzheimers disease
because of this diagnosis i have opted to stop practicing medicine
this blog will be about my journey with this disease
please feel free to follow me along this path
i will continue blogging on organic gardening, green living,
solar power, rainwater collection, and healthy living
i will blog on these plus other things noted to be interesting

Friday, October 15, 2021

organicgreendoctor: alzheimers news-get treated now before symptoms start

organicgreendoctor: alzheimers news-get treated now before symptoms start: ALZHEIMERS NEWS-GET TREATED NOW BEFORE SYMPTOMS START if you would like to get treated for alzheimers disease before you have symptoms if yo...

alzheimers news-get treated now before symptoms start

ALZHEIMERS NEWS-GET TREATED NOW BEFORE SYMPTOMS START

if you would like to get treated for alzheimers disease before you have symptoms if you are over 55 years old
well
if you are willing to be in a clinical trial and be willing to find out if you probably have alzheimers months to years before symptoms start
well
you can do this now
yep
find out if you have alzheimers 
yep
get treatment for it months to years before symptoms start

eg
when i was fifty five if i knew that there was a clinical trial for treating alzheimers before symptoms start
you betcha
i would have jumped at the chance

this study involves eli lillys drug donanemab
its a monoclonal antibody against part of the amyloid protein that is thought to accumulate at the start of alzheimers disease

the theory is that if you could remove this stuff the amyloid before symptoms start then you might be able to slow down the trajectory of the disease

eg
for me it  might have added say 5-10 years to delaying the alzheimers downward slope 

5-10 years is a long long time in the alzheimers world

it works similar to my drug aduhelm (aducanumab)
but
it appears to work even better than aduhelm

the theory is the earlier you treat alzhiemers the better chance you have to slow it down

that treatment is probably available now in the form of donanemab

similar studies are also being doing with aduhelm and with biogens lecanemab

here is the link to lillys donanemab study called trailblazer alz3
here is the clinical trials.gov link to that study 

yep
you betcha
i would have signed up for this one when i was 55
but
ill take second best by taking the aduhelm infusions

we wont know for several years if all of this stuff works

if it does work and you add doing all the healthy things we should be doing 
then
we will die from something besides alzheimers

i have set up my team for the walk to end alzheimers in santa barbara named
organicgreendoctor at this link

because of the pandemic we will not be walking at the walk site but will walk a route up to the santa barbara mission by ourselves wearing our alzheimers walk shirts and carrying our alzheimers flags

we will be thinking of our lived ones who had alzheimers 
mom nell
brother joe
probably dad charles
and
me

i seem to be the lucky one to have gotten a temporary reprieve

please feel free to donate to or join our team to help raise funds to fight this awful disease

the organicgreen doctor

Thursday, October 14, 2021

organicgreendoctor: garden news-pumpkin patch

organicgreendoctor: garden news-pumpkin patch: GARDEN NEWS-PUMPKIN PATCH our community garden pumpkin sale almost didnt happen this weekend first the pandemic looked like it would damper ...

garden news-pumpkin patch

GARDEN NEWS-PUMPKIN PATCH

our community garden pumpkin sale almost didnt happen this weekend
first the pandemic looked like it would damper the pumpkin sale
but
the pandemic has slowed significantly here 
in our zip code the covid immunization rate is over 70%

so covid wont be stopping the pumpkin sale this weekend
all the volunteers will be masked
distancing will be done

i will help set up the event but have elected to not be part of the sale volunteers
even though i am triple vaxxed and am at a low risk for getting the covid virus infection

also the air quality is so bad here i will be wearing an kn95 mask to filter out some of the junk in the air from the fires that are about 25 miles a way

the other reason this sale almost didnt happen was due to one word
gophers

the gophers had an early pumpkin party this year

we at one point were having a caddy shack moment thinking of ways to get rid of them
they were sinister thoughts

we were able to trap several
that seemed to slow down the demise of the pumpkin plants

its sad to work so hard to plant these pumpkins then see the whole pumpkin plant partially disappear down a gopher hole

we didnt win all of the battles but i think we mostly won the war

we now have enough pumpkins to sell but nothing like what we have had in the past
lets just say the gophers that were caught were quite healthy looking with an orange tint to their fur

all the funds raised will be used in the community garden where the produce is donated to needy organizations

i was feeling all bummed about how our pumpkin patch was being devastated by the gophers when i read this article linked here from texas gardeners seeds
note link may not be available until 10-20-2021
it discusses the trials and tribulations of the texas pumpkin producers

they had to endure
excessive rains that led to fungal problems
hailstorms destroyed some pumpkin producers crops
real muddy fields
out of control weeds
armyworms devastating whole fields of pumpkins
prices for fertilizer sky rocketed
prices for wood pallets were higher
the big problem was getting folks to care for the pumpkin fields and harvest and loading them
workers with immigration permits werent allowed in the country

but
the pumpkins are here across the country now
they may cost a little more this year

the crop is about average
most farmers say they will just break even

im glad we do our pumpkin patch not for profit but for giving back to folks

ill not complain about gophers anymore after reading about the texas pumpkin growers trials and tribulations this year

i must say watching a kid pick out a pumpkin with a smile on their faces and proudly carrying it home makes it all worth it

the organicgreen doctor

Wednesday, October 13, 2021

organicgreendoctor: my story revisited #107-presentations

organicgreendoctor: my story revisited #107-presentations: MY STORY REVISITED #107-PRESENTATIONS i have been doing walks to end alzheimers now for the last 11 years several of them have been emotiona...

my story revisited #107-presentations

MY STORY REVISITED #107-PRESENTATIONS

i have been doing walks to end alzheimers now for the last 11 years
several of them have been emotional for me
one was the walks done in 2013 after my younger brother died

my wife she and i went to little rock to do the alzheimers walk after my brother died
that was the one that i probably cried the most at

my first was one where my wife she and i just showed up to walk the day of the walk
it was emotional as we walked and listened to the walkers and listened to the folks at the opening ceremony talking about their personal experiences
it wasnt long after those walks that i was being asked to talk prior to the walks
ive done this numerous times now and i cry every time when i start to talk about my younger brother and my mom dying from the disease

another time i had trouble continuing when i was talking here in santa barbara when ms b yelled out when i looked at her
granddaddy 
sorry i lost it that day but finally got composure enough to continue

so 
yes these walks are emotional for me and for others affected by this disease

prior to the walk in 2013 we did a silent auction to raise money at a local restaurant with an outside venue
we auctioned off a beautiful alzheimers quilt made by a former classmate who was a plastic and hand surgeon who did quilting for a hobby
it got sold finally after a bidding war
i still regret not making a bid on it

another prize was a raised bed vegetable garden that i built and planted for the winner

those were the two biggest prizes

now
for my fundraisers i usually use social media to reach out to friends family and readers of my blog and to folks who have listened to my presentations

when i add up how much my teams have raised in the last 11 years for the alzheimers walks i realize how successful our efforts have been

the local alzheimers organizations like alzheimers texas alzheimers arkansas alzheimers greater la and the alzheimers association have made the difference in providing local services to folks in the dementia world and for having influence on politicians to support alzheimers research

we wouldnt be where we are today without their influence

support your local alzheimers walks
they do make a difference
________
09-06-2013

PRESENTATION WAS GOOD
 
this is how we did our presentation of our items for
our silent auction we held last wednesday
you can get an idea of the size and beauty of that
alzheimers memory quilt

this week as i put all the work that went into getting
this silent auction all set up
i thought
why am i really doing all of this
is it really making much of a difference in the long run

ok if you are over 65 or if your family member is over
65 you or they have a 1 in 3 chance of getting alzheimers
that folks is high odds

what can we do about it right now if we get it
not much im afraid
it is maybe worse than cancer
its the kiss of death
if you get it you will die from it

since i probably have alzheimers disease and am on aricept
(donepezil) because of this possibility
and
since my mother died from alzheimers and my dad probably
had alzheimers
and
since my younger brother sadly died last month from this
horrible disease
i felt like i need to do something to advance the cause
so

i participate right now in three large alzheimers research studies
at ut southwestern medical school alzheimers research center

i write this blog although not all about alzheimers i try to write
about it at least every friday
this blog is read by people across the us and several countries

i talk to everyone who will listen to me about alzheimers

i wear if you will an alzheimers chip on my shoulder

i give talks on alzheimers when asked-i have 2 this month

i am on three of the walk to end alzheimers committees  in
this area
i have a team
the organicgreendoctor in the williamson county walk to end alzheimers
where i do most of my fundraising
a team in the bell county walk to end alzheimers
a team with austin regional clinic in the austin wallk to end alzheimers
and
i support my brothers team
#joe nash for this years first el dorado ark walk to end alzheimers
 
why is the fundraising important for the alzheimers association
the alzheimers association is the third largest supporter of research
in the world behind china and the us national institute of health

the only way the alzheimers association gets funding is through
donations and fundraising
most of their funds are received from these walk to end alzheimers

its only through research that the answer to adequately
treating this disease will be found
and
that funding can only come from you and me
as the government needs to put more monies in towards
finding the answer
so
thats why i do all this talking and writing about these walks
since its important to me personally but its important
to all of you
now or in the future as it will be affecting 100% of you
in some way

you can go to www.alz.org/walk to find a walk in your area
find your state and click on it
then find the walk near you

its you and i that will help find the answer
_________

i have set up my team for the walk to end alzheimers in santa barbara named
organicgreendoctor at this link

because of the pandemic we will not be walking at the walk site but will walk a route up to the santa barbara mission by ourselves wearing our alzheimers walk shirts and carrying our alzheimers flags

we will be thinking of our lived ones who had alzheimers 
mom nell
brother joe
probably dad charles
and
me

i seem to be the lucky one to have gotten a temporary reprieve

please feel free to donate to or join our team to help raise funds to fight this awful disease

the organicgreen doctor

Tuesday, October 12, 2021

organicgreendoctor: a lost year

organicgreendoctor: a lost year: A LOST YEAR in years past we have gone out to a restaurant for our anniversary last year we didnt this year we didnt why the pandemic this y...

a lost year

A LOST YEAR

in years past we have gone out to a restaurant for our anniversary
last year we didnt
this year we didnt
why
the pandemic

this year we went to the beach thanks to an anniversary gift
a blanket with bottles of wine and champagne and cheeses and a meal
all laid out for us to enjoy

we sat on the blanket and talked while the sun started setting in the west
this location is a favorite spot to see the sunset
that day it didnt disappoint us

my wife she says im going to ask you the 4 h questions
say what
you mean like agriculture stuff
no
she said
i use to ask my students these questions to learn about them

i thought to myself
lordy you already know all about me

one question
what makes you happy
now
i wasnt feeling really philosophical that day 
i said
im just happy to be alive
thinking about surviving whatever i had a year and a half ago
thinking i was agoner for sure a couple of times

i was happy that i havent died from alzheimers yet

what gives you hope
i said
that the aduhelm (aducanumab) will slow down alzheimers for myself and others

as i write this i cant remember the other two hs

i guess i wasnt very thoughtful at the moment
since
as i looked at the sun setting in the distance i was thinking a lot about the last year and a half
realizing it was a lost year

i said
you know i havent been to the beach for over a year and a half
i love the beach
i love walking on the beach 
i love walking above the beach on the cliffs above the ocean
there is something relaxing and mesmerizing about it

but
i havent been there at all even though we live only 2 miles from the beach

from that thought i wandered across a lot of thoughts
we havent really been to a restaurant or movie or show 
well we did meet friends at an outdoor restaurant in los angeles recently
we havent flown or traveled
we havent made our annual visit to see friends and family in over two years
thank goodness for email texting facebook facetime and zoom
i lost a brother and didnt get to attend his funeral but did get to attend a memorial service on line via a zoomlike hookup
i havent been able to go with mr hudson for his hospitalizations and his doctor appointments
we havent got to do a lot of what we usually do

thankful there seems to be some light at the end of the tunnel soon so we can safely resume our prepandemic activities
thankfully most of our contacts are double vaxxed
the kids will get theirs soon

i want to
shake a hand
kiss a cheek
give a hug
sit and visit and eat and enjoy loved ones company 
without he fear of getting sick and dying

i dont ever want to lose another year again

the organicgreen doctor

Monday, October 11, 2021

organicgreendoctor: covid 19-maybe and maybe not

organicgreendoctor: covid 19-maybe and maybe not: COVID 19-MAYBE AND MAYBE NOT thats the answer to the question i get asked a lot is the covid thing going to get better anytime soon maybe an...

covid 19-maybe and maybe not

COVID 19-MAYBE AND MAYBE NOT

thats the answer to the question i get asked a lot
is the covid thing going to get better anytime soon

maybe and maybe not
it depends

thats my final answer right now

the case rate per 100,000  and at least 1 shot of vax
in santa barbara county its 10.6 and 70+%
in california 15 and  73%
in texas 26  and  60 %
in arkansas 23 and  56%
in florida 16 and  68%

california has more mandates like masking and vax mandates

the worst areas are tending to now be in the northern states
maybe from the colder weather thats heading that way

this week the fda will vote on boosters for moderna and jand j
also they will vote on mixing vaccines for the third booster

in early november the fda will vote on approval for the shots to be given to kids 5-11
soon after that they will vote on approval for kids under 5
so probably if approved kids 5-11 will start getting them before thanksgiving
the younger kids before new years or soon after that

so by the first of the year most of the us population will be eligible
probably about 25% will chose not to get theirs

they will be the ones that will be getting covid and they will be the ones that we will be seeing in our daily stats of how many cases per day and how many died that day 

were are losing around 1700 folks a day now to covid
almost all are unvaxxed

it doesnt have to be this way
but
it is

we feel much safer now that we are triple vaxxed
our chances of getting covid is probably close to zero
we still wear our masks and play it safe until all the kiddos can get vaxxed 
that should be some time early next year
our sigh of relief will be when 3 year old kidney transplant mr hudson is double vaxxed
no when he is triple vaxxed

i do look forward to returning things back to normal

its sad to see folks die from covid and see the sadness of their families
and
to see the fatigue on the medical workers who have been taking care of all the sick covid patients
many of those workers will be scarred emotionally forever
many of those covid survivors will be scarred physically forever

a hospital nurse told me the other day that some of the covid patients are so fragile after discharge from the hospital that they have to be admitted over and over again

of the major industrialized countries we are near the bottom of how well we are handling the covid pandemic

it didnt have to be like this

so
maybe we will be back to more normal in a few months
but
maybe we will not be able to 
but
i feel inside like we are going to be able to return to the old normal soon

i sure hope so

the organicgreen doctor

Friday, October 8, 2021

organicgreendoctor: alzheimers news-he left his heart in san francisco...

organicgreendoctor: alzheimers news-he left his heart in san francisco...: ALZHEIMERS NEWS-HE LEFT HIS HEART IN SAN FRANCISCO BUT LOST HIS BRAIN TO ALZHEIMERS last night we watched the 60 minutes segment on tony ben...

alzheimers news-he left his heart in san francisco but lost his brain to alzheimers

ALZHEIMERS NEWS-HE LEFT HIS HEART IN SAN FRANCISCO BUT LOST HIS BRAIN TO ALZHEIMERS

last night we watched the 60 minutes segment on tony bennett and his battle with alzheimers disease
he is 95 and is no longer singing publicly anymore
he recently did one final show with lady gaga honoring him one final time

the family and his doctors decided it was time to stop

ok so i teared up multiple times watching the show

it was interesting to see an obviously cognitively impaired tony bennett with his dementia shuffling and dementia staring and lack of communication skills
suddenly
get transformed in front of our eyes
into this different person 
its like a switch in the brain got turned on

he can sing his songs without assistance
his brain seemed to be working closer to normal

then
when its all over he converts back to his dementia persona

music turns on that switch in the brain
its been seen multiple times before

one video i recall and i blogged about was the elderly noncommunicative man in a long term care facility that when someone put earphones on him and turned on jazz music on an ipad 
he became animated and alive

music activates so many different areas of the brain
it sort of jump starts the brain to working while the music plays

if you are in the alzheimers world i suggest you stop and watch the segment below on tony bennett
i found it fascinating and sad but happy segment



video link here if not showing on your iphone
so
try playing your loved ones with dementia their favorite music for them to enjoy 
you may get rewarded with an increase in alertness
that will be good for your heart and soul
and
will give them a few minutes of happiness
in
that
tomb of dementia their brain is locked in 

in my wishes when we did our will i asked that they play frequently my favorite music like country western or classical music or 60s and 70s music or willie nelson music or beatles music

hopefully it will open my brain back up some so i can enjoy life for a few minutes each day 

i have set up my team for the walk to end alzheimers in santa barbara named
organicgreendoctor at this link

because of the pandemic we will not be walking at the walk site but will walk a route up to the santa barbara mission by ourselves wearing our alzheimers walk shirts and carrying our alzheimers flags

we will be thinking of our lived ones who had alzheimers 
mom nell
brother joe
probably dad charles
and
me

i seem to be the lucky one to have gotten a temporary reprieve

please feel free to donate to our team to help raise funds to fight this awful disease

the organicgreen doctor

Thursday, October 7, 2021

organicgreendoctor: garden news-how to garden in a raised garden bed

organicgreendoctor: garden news-how to garden in a raised garden bed: GARDEN NEWS-HOW TO GARDEN IN A RAISED GARDEN BED when we lived at the country n in texas i basically had several hundred square feet of rais...

garden news-how to garden in a raised garden bed

GARDEN NEWS-HOW TO GARDEN IN A RAISED GARDEN BED

when we lived at the country n in texas i basically had several hundred square feet of raised beds
i used left over limestone bricks from a housing project to build the sides of the beds
then i bought a real good organic garden soil that had everything in it like compost good soil greensand organic fertilizer etc
i dumped it in my bed and planted my crops
then
each season i added a generous amount of organic compost i made myself plus a good organic fertilizer plus a soaking of a mix of fish emulsion+seaweed+molasses
the fish emulsion provides nitrogen the seaweed provides minerals and some hormones and the molasses provides food for the bacteria and fungi in the soil
then
i planted my crops
then
every 15 days i watered the plants with the fish emulsion seaweed molasses solution
using this method i usually produced good crops

it was a method i learned from reading and listening to the dirt doctor howard garrett and to the folks from the natural gardener like john dromgoole and from reading and listening to malcom beck from san antonio
these three guys are the organic gurus of organic gardening in texas

recently someone texted me 
we have this young couple who need help with their backyard garden
would you mind looking at it and giving them advice

you betcha i said

the young couple have two young kids that love the garden
they are new at gardening 
but from looking at what they produced this year they have done well for novice gardeners

in fact
they gave me about 25 lbs of squash they grew 
i donated it to an organic soup kitchen which will use it in their delicious nutritional soups
the ones that kept me alive last year when i was starving to death

they have several raised beds sitting on what looked like is packed granite sand
they are well spaced apart
the beds are about 3 ft x 8 ft in size
they are from 18-24 inches tall
they are made from untreated wood
dont use treated wood in your raised beds
in texas we used cedar  but any nontreated wood is ok
cedar just lasts longer
in california the best is redwood but its also expensive
i have used douglas fir since its cheaper but doesnt last as long

here you have to put wire to keep out gophers
the best is hardware cloth but they do make a gopher wire
for raised beds though use hardware cloth nailed or stapled in place

you need a sunny location with late afternoon shade is best
that is what this couple has 
at the kindergarten garden that i help with it is mostly shady and restricts what will grow there

they have water lines to each bed with a dripper or mister system
i personally have always used a dripper system so the leaves dont get wet
here things like cukes squash tomatoes are real prone to mildew and fungus disease because of the fog
its hard though to argue with their success

then the soil
its the most important part
you have to start with good soil
they were able to purchase good soil from local nurseries
in central texas you can find bulk organic garden soil that is ready to use
here i have had to make my own
its important to add compost to the soil
i always say you cant use too much compost
in my beds i add about 3-4 inches and fork it into the soil
i never use a shovel in my garden
i would add a good organic fertilizer
i use a 4 4 4 brand that all the nursery sells
dont use the granular nonorganic fertilizer since you can get salts buildup in your soil
that includes miracle grow
add a soaking of the fish emulsion seaweed molasses solution

as a general rule if you have earthworms that love your soil then you have the soil where you want it

when you have done all this its ready to plant

now what i do is prep my beds a few weeks before i use them so they will ripen
that allows the bacteria and fungi to grow 

i water my garden regularly before i plant my veggies
when my plants are established i water every 3-7 days based on the weather
eg 
in the dry season i water every 3 days and in the cooler season i may water every 7 days
i recently purchased a water meter that looks like a big thermometer that reads the moisture level in the soil
im surprised at the readings sometimes 
when i thought it was too dry it turned out to be wet
it cost me about 15 bucks
i use it even in the community garden beds to make sure we arent overusing our water

also there is a saying 
plant a 5 cent plant in a 5 dollar hole

in one of their raised beds they have bermuda grass that has made a stronghold
they have two choices

one
pull it out continuously every time they see it pop up 
they might be able to finally get rid of it
it was in one of my beds when i first started gardening at the community garden
it took a couple of years to finally eradicate it
or

remove all the soil and add new soil
they do make a soil thats just for raised beds thats sold in most nurseries
i must say the young couple soil looks like a good soil

when they pull out the grass dont compost it send to the trash not the compost bin

so 
now if they do all that then they are ready to plant things
the secret is timing of when to plant
its different gardening here since each year seems different
eg last year at this time the tomatoes peppers egg plants cukes squash were going strong because last year was wetter and the fall was warmer
this year  its drier and cooler and has more fog and they arent doing as well

i usually only plant transplants in my garden except for maybe carrots or my salad mixes
even when i plant my salad mixes i will plant a six pack or two of lettuce transplants also
these shade and protect the lettuce seeds 
as soon as i get my first cuttings off the lettuce transplants the seeds will have sprouted
i use scissors like a lawnmower cutting grass to harvest my lettuce
the lettuce will grow back
i will seed the lettuce several times in the fall winter and early spring to provide months of greens

i take a spice shaker and put in beets spinach swiss chard arugula and various lettuce mixes
i just shake those on the soil and lightly if at all cover the seeds

timing of planting is important
i will send them a handout of when to plant things here and a handout of how far apart to plant things
although in a raised bed you can get by planting things closer together

i plant things in our greenhouse in six packs or 4 inch pots then transplant them to the garden
sometimes i just buy them at the nursery 

please only use organic products in your garden
many pests can be picked off and sprayed off with water
in my garden basket i have insecticidal soap spinosyn bt neem oil sluggo plus for snails and pill bugs
but
again i usually dont use much pest stuff
aphids i usually just keep washed off
pill bugs eat my new plantings so i sprinkle some sluggo plus around my new plantings
my guess is they wont have issues with the pill bugs and snails

now after they plant it they just need to take care of it and enjoy the harvest

when they first plant things based on the weather they may need to hand water things some until they are established 

i recommend a compost bin to compost things from the kitchen and for garden waste

i large black composter works well
we have two in our community garden 
you use equal amounts of greens and browns
greens are kitchen material not meat cheese salty stuff or bones
grass clippings green yard clippings
browns are leaves shredded newspapers cardboards
is good to shred or chop things into small pieces first since they will compost faster
the pile needs to be kept like a wet sponge 
not too wet
if it gets too wet and smelly it means you need more brown stuff
its nice if you occasionally turn the compost with a shovel or garden fork
make sure you have a lid on it to keep animals out

the best compost to use is the compost you make yourself

a good local organic santa barbara garden blog on what to do each month is 
green bean connection 

in our community garden we have planted by seed sweet peas vine and bush variety celery carrots lettuces broccoli cabbage swiss chard cilantro cauliflower beets  and fava beans
soon we will plant from transplants leeks onions and garlic and kales

below is the vegetable planting schedule for southern california
note this is for planting seeds
if you are using transplants move forward 1-2 months

here is the high mowing planting chart below pages 1 and 2
the depth of seed planting and the spacing and whether to seed or direct plant with a transplant is the important categories to look at




enjoy your veggies

yall might follow their lead and start you a backyard raised bed garden

the organicgreen doctor

Wednesday, October 6, 2021

organicgreendoctor: my story revisited #106-hope it was available for ...

organicgreendoctor: my story revisited #106-hope it was available for ...: MY STORY REVISITED #106-HOPE IT WAS AVAILABLE FOR HER FAMILY mary anne roser is a journalist who wrote an article linked here about me late...

my story revisited #106-hope it was available for her family

MY STORY REVISITED #106-HOPE IT WAS AVAILABLE FOR HER FAMILY

mary anne roser is a journalist who wrote an article linked here about me
later she wrote the article mentioned below in the blog i wrote 8 years ago
the links in the article below are old and are not now available 
however here is the updated article link on the story she wrote in 2013 about the young lady being the caregiver for her middle age sisters with early onset alzheimers

when she wrote this article my younger brother had died a few weeks earlier and it was about 2 years after she wrote this article about me that was picked up by many local papers across the us

i have wondered at times how this young lady faired
her family has the early onset alzheimers gene 
its the one that if you get the gene you will get early onset alzheimers disease

my guess is that her sisters have died with alzheimers by now
she  was lucky and didnt get the gene
the symptoms start in their 30s and 40s and they die in their 40s and early 50s

compare that to the later onset alzheimers gene called the apoe 4 gene where if you get it you might not get alzheimers disease but you are at an increased risk for developing it
you can alter that risk by maintaining a long term healthy life style
thats the one i have
thats the one my younger brother probably had as well as my mother both who died with alzheimers
he at 62 her in her mid 80s

there have been monoclonal antibody treatments using antiamyloid antibodies in early onset alzheimers but so far it hasnt seemed to help
there are newer antibody treatment studies in these folks that are ongoing now

i hope her family members will qualify for them

if she had gotten the gene then she would be doomed to follow her sisters course
 she didnt get the gene she so is able to move on with her life

im hoping i got a reprieve by being on the aduhelm (aducanumab) infusions which may slow down the disease
i feel lucky to be one of only a few folks in the us and the world to be on this drug
i get infusion #5 in the restarted biogen aduhelm treatment study next week
i am at the point where i am at risk for developing aria or microbleeds in the brain
after each increase in dose i have an mri to make sure im ok
this infusion is the start of the 6 mgm dose so i will get a mri next month and again in january
i had one last week following my 2nd 3 mgm dose 
so far so good

if i develop aria i will be paused in the study until it clears
i had 7 doses in the prepandemic study and had no issues
i ended up on the 10 mgm dose without any issues

its hope is what it gives
she and her sisters had no hope

ill take hope anytime

__________

08-30-2013

ARTICLE

mary ann roser wrote an excellent article last sunday in 
the austin american statesman on alzheimers disease that has
struck a family when they are young

there is a video in the article that you can watch
but the written article requires digital access
(that sucks since the article is such a good one)

she is the one who wrote the article about me 2 years ago
that was published in the same paper
if you look at the top of this blog you will see newspaper article
on my story
click on it to read the article

in her latest article she tells the sad story about this family who
some of them
have inherited one of the dominate genes such that if you get the
gene you get the disease that dreadful alzheimers disease

in their case they get it so young
and they die from it so young
she has two sisters with the disease now

in the article the person who is in her late 30s who now has
the disease has to have her sister as her caretaker
then
one of the sisters with the disease has a 20 year old daughter
who may or may not have the disease
she hasnt been tested
at this point why do it

if she has the gene then the disease is actually starting up
in her now and she will be where her mom is in 15 years

when my younger brother was diagnosed everyone said
he is so young
and he was so young
he died recently with it
so young

this young lady this 20 year old if it was 2023 might be
able to get on medicine or injections so that 15 years later
she would not have the disease

we are headed to that point but we are at the early part of
that journey so help is not available yet

my brother missed that journey and i may be too late to
jump on for a ride when it gets here

hopefully it will be there for her

in colombia there are families with this dominant gene for
alzheimers
several members with the gene will be started on one of
the alzheimers vaccines and will followed for 5 years to see
if it slows or stops the disease
several studies using these vaccines are being done here in the us
i  am hoping to qualify for one of those studies

please support us in the fight
donate and or join a walk to end alzheimers in your area
at www.alz.org/walk
__________
we are closer to finding more treatments and hopefully a cure for alzheimers disease

i have set up my team for the walk to end alzheimers in santa barbara named
organicgreendoctor at this link

please feel free to donate to our team to help raise funds to fight this awful disease

 
the organicgreen doctor