my story revisited #222 -my videos tell my story

MY STORY REVISITED #222-MY VIDEOS TELL MY STORY


about 4 years ago i did the above video for being patient
they had read the article in the new york times where i was interviewed about being in the aduhelm clinical trials

the video is about 50 minutes long
i had never gone back and watched it since i was interviewed

last week i was watching the video below about a patient similar to me and his spouse
after i finished watching it i thought i will watch my video above and compare what i said and he said
so i searched on the being patient website and found my video and watched it

that picture on the video is me giving a talk and a q and a session for a group in austin texas about 10 years ago
That video is also online and i went back and rewatched it also
it is below 



in this video i talk about studies that have since failed
the solanezumab study the a4 study the colombia study the sniff study
none of these were successful

however
my study the aduhelm study i mentioned gave me 34 months of aduhelm infusions of an antibody that removed the measurable antibody plaque from my brain
then
not long after that the aduhelm cousin leqembi finished its trial
it is slightly more successful than aduhelm
biogen which marketed both of then dropped aduhelm and put all its effort into the leqembi treatments that the patient below took
aduhelm is off the market now

one month after i gave the austin talk i got the results of my amyloid pet scan
it was positive for amyloid plaques
i was then accepted into the study where i received 18 months of placebo and 34 months of aduhelm resulting in the removal of those amyloid plaques

the plaques will eventually reaccumulate so you have to get on a maintenance dose to keep them from coming back
i am working on seeing a neurologist that will give me leqembi which is now available as an injection you can give at home

oh my how things changed in the alzheimers world

there are now thousands of us like me and the pattient below who have been treated

i consider us the lucky ones
so far

what i realized in watching first the couples video then my two videos is how far the evaluation and treatment of alzheimers has progressed in the last 15 years since i was diagnosed

we now say as i say in the video that some hope is better than no hope at all 


our cases are similar
he has apoe4 apoe4 like i do
he took or is taking leqembi an antiamyloid antibody that removes amyloid plaque from the brain
i took aduhelm leqembis cousin that has removed all the measurable plaques from my brain

he is doing all the healthy things one should be doing to slow this down
things like staying active mentally socially and physically
eating a good diet like the mind diet
get adequate sleep
treat anxiety depression and stress
avoid meds or drugs that can make it worse
avoid excessive alcohol
dont smoke
control diabetes cholesterol and blood pressure
avoid obesity
do all of these starting when you are young 

he is taking aricept or donepezil to slow down symptoms
it doesnt stop the disease

they are staying busy like my wife and i are
not letting the diagnosis slow you down

if you are in the alzheimers world watch these three videos
there is a lot of helpful information for you and your family

and some hope

be sure and follow the being patient website
any new things that happen in the alzheimers world will appear there

listening to others who are going through this may help you 

be proactive

there is some hope now

the organicgreen doctor