my story revisited #221-la bobera wasnt helped

MY STORY REVISITED #221-LA BOBERA WASNT HELPED

i wrote this blog 10 years ago a few months before i started the aduhelm or aducanumab clinical trial at ut southwewtern
i received 18 months of placebo as it turns out and later took 34 months of the real drug aduhelm

it removed all of the measurable amyloid from my brain as shown on my last amyloid pet scan almost 2 years ago

about the time i started getting my aduhelm infusions researchers started giving similar drugs to these folks below in colombia 

I have late onset alzheimers
they have the genetic familial early onset alzheimers caused by the presenilin gene

the drug did not work on them at all and didnt work on others with the same condition in research centers elsewhere in the world

for me and those like me the drugs may slow down the disease some
for those folks it didnt do anything
__________

11-15-2015
ALZHEIMERS NEWS-LA BOBERA

there is early onset alzheimers disease
it less common
its what alice had in the movie still alice

basically if you inherent the gene for alzheimers
you will get the disease
a cruel way to pass down your genes
a lethal one

dailymail.com.uk
a researcher at uc santa barbara has looked closely at the genetics
of a town in colombia
called
yarumal in the state of antioquia
well known for the wrong reason
for the worlds largest population of folks with alzheimers disease

5,000 carry the mutation for early onset alzheimers
1/2 of them will be diagnosed with alzheimers at 45
the other half will die before they are 65 with
what they call
la bobera
the foolishness

the researcher drew blood on 102 folks from antioquia and found
72 folks with the mutation gene for alzheimers disease
all 72 destined to die from this awful disease

using genetic analysis and historical data
like a super ancestry.com
the conclusion based on the fact the dna was tracked to
western europe
was that there was a common ancestor to all those folks
in antioquia who had the awful alzheimers gene

a spanish conquistador who had the mutation gene in his dna

an infiltration into their society that has harmed generations and
generations of folks

now this area is an hot bed of research on alzheimers disease
many of the new treatments that are being tested
are tested here
a large population of folks all of who are going to die from
alzheimers

one problem with the study
all those tested who were positive were not told they had the disease
since genetic counseling was not available to the population

whether this was ethical is another discussion

one boy asked to be told if his was positive

why
the researcher asked
there is no treatment

the boy took his hand shaped it like a gun
cocked back the thumb

well you get the picture

la bobera


this is alzheimers awareness month
the clinic where i worked did an interview with me
on alzheimers
here is the link to the article they wrote
three facts you should know about alzheimers
_________
the link to the interview is no longer available

later researchers have given the drugs these antiamyloid drugs to these genetic early onset alzheimers patients who have no symptoms yet and followed them for several years and it seems to be slowing down symptoms slightly
when given after symptoms started it did nothing

if you had la bobera what would you do


Join and or donate to your local walk to end alzheimers

our walk to end alzheimers in santa barbara is saturday november 15th
this will be our 15th year to do the alzheimers walk

here is the link to my team organicgreendoctor

the organicgreen doctor