alzheimers news-#5 down and thanks

ALZHEIMERS NEWS-#5 DOWN  AND THANKS

on tuesday i went it for my #5 infusion of the aducanumab stuff
well it might have been the placebo
i will never know if i got the real stuff or not
nor will the researchers at ut southwestern alzheimers research center
its a double blind study

now
like i have written before
if this stuff seems to work in little over a year in those who got
the real stuff
it will be offered to all of us for another 3.5 years
extending my treatments well into 2022
heck we will have had another election by then for president

today while awaiting my call for my infusion
as i sat in the lobby
there was another couple sitting there waiting also
i went over and struck up a conversation

wow how similar this guy and i were
we were about the same age
we were both professionals white collar that is
we both were surprised by our diagnosis when it happen
we were using the same words as we talked
he said i dont want that placebo stuff
i want the real deal stuff
i said that also i thought to myself

just think if this stuff were to work in both of us
then
in 5 years we will be just like we are today
no better maybe
but
not worse
thats all we can ask for
we both agreed on this

i wish to say thanks
to the alzheimers disease center at ut southwestern for providing
care for me and helping me along this journey
the last 7 years

special thanks to
kristian
kasha
zohre
barb
dr rosenberg
dr quiceno
dr williams
dr womack
for being on my side as we move forward to fight this
terrible disease

i as a volunteer for the research studies
them as researchers trying to find a cure

a reminder
the biggest obstacle to finding a cure
is you
there are not enough volunteers for these studies
that is sad
that we cant get the research done
because theres not enough money
theres not enough volunteers

www.clinicaltrials.gov can link you up to studies in your area

i am doing my part to fight this disease
what are you doing
remember
everyone of you will be affected by alzheimers disease
if you are female and you live long enough
you will more likely get alzheimers disease than not

so as i got my infusion
got the needle out of my arm
drove to the airport
got on the plane
to fly back to california

yes
i was sad
i left an important part of me back there
but
hopefully i can gain some of it back
as
we move forward to ucla to continue our fight
against alzheimers disease

remember
we need financial support to fight this disease
and
emotional support to deal with it

join us as we walk this year

we will be doing the
alzheimers texas walk in georgetown texas
on saturday september 23rd
team name is organicgreendoctor

yes we will be in georgetown for the above walk
as we walk with our austin friends and family
do join us
come say goodbye to us

i also will have a team in the
santa barbara walk to end alzheimers 
on saturday october 28th
team name is organicgreendoctor.com

join us

the organicgreen doctor

alzheimers news-its the oil

ALZHEIMERS NEWS-ITS THE OIL

there are two diets recommended for slowing down alzheimers disease
and
it bodes well for folks trying to slow down or prevent
heart attacks and strokes
obesity

one is
the mediterranean diet
the other the mind diet
both are similar

the mind diet is really a blend of
the mediterranean diet
and
the dash diet for blood pressure

i like the mind diet
click on the link here to read about it

one ingredient it seems all recommend
is
extra virgin olive oil

extra virgin oil is well like fresh squeezed orange juice
it uses mechanically squeezed olives fresh ones to produce
the pure olive oil
the other olive oils are extracted using chemicals
thus
extra virgin oil is the better choice
its the one recommended

a recent study at temple university showed that in mice
who were fed evoo rich diet
thats extra virgin olive oil rich diet
that the autophage cell cells
those garbage cells in the brain
were activated by the extra virgin olive oil diet

these cells clean up debris inside the brain
plus
these mice had better memories and learning abilities than those
not fed the evoo rich diet
the evoo rich diet mice had better neuron connections than those
who didnt eat that diet

if this extrapolates to humans
which it probably does
which as far as i am concerned it does
then we all should be on this as our oil of choice

you may be smarter for it


this has been a sobering week for me
as i head back home where i grew up for our annual family reunion

i always it seems seem to come face to face with reality
as i visit
the grave of my younger brother who died at 62 with alzheimers disease
looking at his grave looking at old pictures seeing his progression
it makes it well sobering
thinking of what he and his family went through

i visited my mom and dads graves
thinking of both of them
thinking mainly of her and her final downward course with the disease

i visited with  my older brother diagnosed about 3 years ago
who is on aricept donepezil like i am
that was less sobering as he seems to have improved over time
well like i have over the last several years

as i am here
sandwiched between my second mri then early next week
my fifth infusion and final one at ut southwestern in dallas
before
my care then switches to ucla

yep
it all makes me
pause
take deep breaths
and
really realize how lucky i am and we are to be where we are with all this
not where we expected to be 7 years ago

remember
we need financial support to fight this disease
and
emotional support to deal with it

join us as we walk this year

we will be doing the
alzheimers texas walk in georgetown texas
on saturday september 23rd
team name is organicgreendoctor

i also will have a team in the
santa barbara walk to end alzheimers 
on saturday october 28th
team name is organicgreendoctor.com

join us

the organicgreen doctor

my head hurts

MY HEAD HURTS
thats what i told my wife she
last week as i was headed towards getting my mri

thats good she said
no
she wasnt being mean to me
she like me knows that if my head hurts a week or so
after getting my infusions of the aducanumab
thats a good thing

thats a side effect of the medicine
since
if i get headaches
that could mean i am getting the real thing

however
i will never ever know if i did get the real thing
unless
this mri shows something

the way this stuff works
the aducanumab
is it is an antibody to the bad beta amyloid that forms
plaques in the brain
beta amyloid plaques
these plaques damages brain cells
thus
the beta amyloid theory of what happens in alzheimers disease

remove these plaques then you are slowing down
or
if we are all lucky
stopping the disease in its tracks

the headaches
if they are caused by the aducanumab
occur in folks who receive it who have the apoe 4 apoe4 gene
which i do

for some reason those of us with this combo
are at risk as the beta amyloid is being removed
of getting micro bleeds
like
when you remove a scab off a wound
and
it bleeds

so you can get these when you remove the plaques of beta amyloid
with the aducanumab
however
if you get these micro bleeds
you get ousted from the study
since
things have the potential to get worse if it progresses

so if they call me to tell me the results of the mri
thats not a good thing
not hearing anything
thats a good thing

now dont worry about me
getting bleeding in the brain

i had headaches 24/7 after the first infusion
that lasted a week
however
that headache the other day was the first one i have had since

i have a different feeling
a different approach
i like having the headache up there
i usually wont even take a tylenol for them
they just remind me
that maybe
just maybe
i am one of the lucky ones that is getting the real thing
the real deal
i want to experience the full headache
its almost comforting knowing that its there

then
i do have about a week of fatigue two weeks after the infusions
that lasts about a week
i am in that time period now
just ask my relatives and friends i am visiting
as i fall a asleep mid day while visiting with them
ok ok
i do admit
that ive done that to them before over the years
not able to blame it on the aducanumab in the past
but
i can now

as i progress in the study
i count a total of 7 mris i will have over the course of the 18 month portion of the study
i count a total of 3 amyvid pet scans the pet scans for beta amyloid
i count approximately 20 infusions of the aducanumab

i would love to see that last amyvid scan thats done at the 18 month mark
if i got the real deal
the aducanumab
all that beta amyloid will be gone
if i didnt get the real deal
if i got the fake stuff the placebo
then that scan will still be positive like it was when it qualified me
for the study

at least next year
if this stuff is working for those who get it
and
not causing too much side effects
then the stuff i will be getting in my infusions
will be the real deal stuff
the aducanumab

so
thats why i get excited
when i have side effects
when my wife she is glad when i get a headache
when i fall asleep on everyone while i sit on the couch

weird huh

the organicgreen doctor