welcome to the organic green doctor blog

i am a family physician who was diagnosed with
early mild cognitive impairment(mci) amnestic type on december 21, 2010
this is a precursor to alzheimers disease
because of this diagnosis i have opted to stop practicing medicine
this blog will be about my journey with this disease
please feel free to follow me along this path
i will continue blogging on organic gardening, green living,
solar power, rainwater collection, and healthy living
i will blog on these plus other things noted to be interesting

Monday, September 25, 2017

alzheimers news-post walk thoughts

ALZHEIMERS NEWS-POST WALK THOUGHTS
these walks are what keeps the alzheimers engine going

these funds raised
provides education about this terrible disease
provides an opportunity for families to come together
to share their experiences with this disease
provides a chance for family and friends to support those
friends that have been affected by this disease
help fund research no matter how small to reach
all our final goals
a treatment
a cure
a way to prevent
alzheimers disease

we all there had the same goal
some of us more affected than others

this is the group that walked with us on saturday
our team

it was made up of friends and former patients
folks from both my wife shes and my lives
supporting us as we march forward looking
to reach our goal of a cure or treatment

even these two were there
wearing shirts from our first walk several years ago
they werent even born yet
but they have these shirts on
walking for the cause
both parents were former patients

there were folks there from
habitat for humanity
meals on wheels
my former clinic
former patients
my wifes shes friends and former teacher friends

it felt good to be with them
knowing we had this type of emotional support
and financial support
for the future

later many of us got together for lunch at a
nearby restaurant
to continue our celebration
a celebration of life

this walk was different
it felt different
as
i knew as did they that this one would be our last one
here in central texas

i feel good
that i somehow have left a mark in this area
hopefully advancing awareness for the fight against this disease
that folks will remember for a long time

thanks
to all who supported us here
emotionally and financially
as we move forward against this disease

you will not ever be forgotten

the organicgreen doctor

Friday, September 22, 2017

alzheimers news-reflections

ALZHEIMERS NEWS-REFLECTIONS
Image result for organicgreendoctor
the fall this time of year
i tend to do a lot of reflecting
i guess because thats when all the alzheimers walks occur
when you see a lot in the paper on tv and social media
about alzheimers disease

i start thinking a lot about our family
Image result for organicgreendoctor
my mother nell
a nurse who was struck with this dreadful disease
later in life
it was sad to see her deteriorate so slowly

my father charles
he died of heart disease but probably had early alzheimers disease

my older brother charles was diagnosed 3 years ago
he seems to be stable for now

Image result for organicgreendoctor joe
my brother joe
a retired fireman
a retired deputy sheriff
he was struck with the disease much too young
in his early 50s
he was gone in his early 60s
i think about him a lot

when i was diagnosed in december 2010
i really thought in september 2017 i would be where he was with his
disease at that time

i feel so lucky that i am able to sit here today
writing this blog
doing all the things i did when i was diagnosed
7 years ago
i really didnt think i would be able to sit here this morning
and
write
and
drive
and
do all our finances
and
know everyone
and
travel
and
see my granddaughter start to grow up
Image result for organicgreendoctor miss b

i feel lucky
maybe its from
all the healthy stuff i do
all the protocol stuff i do
the medicine aricept (donepezil) slowing this down
maybe
just maybe

if i am  lucky the aducanumab i am getting each month
an antibody infusion against the bad beta amyloid in the brain
the stuff that may be the cause of alzheimers
might slow things down some

Image result for organicgreendoctor alzheimers news
i know from preliminary studies that if i an not getting the
placebo but the real aducanumab that  most of that stuff the amyloid
will be removed by next year
the question is
will the memory stabilize or get better for those of us getting
this experimental drug
if it does work to improve memory
then its part of the answer
then
ive gained 5 years
which if you have had a love one with this disease like we have
thats a lifetime of time

i think about all the folks i have met over the last 7 years
patients husbands wives sons daughters grand kids cousins friends
all like our family deeply affected by this disease

i know many of you who are reading this blog
your family has been affected also

i will be thinking about my family and yours and theirs
as i and my family and my friends and former patients
do our walks this fall to raise awarenes
and
to raise funds to educate and finance research and encourage
our government to do more
Image result for organicgreendoctor miss b
tomorrow here in texas
there will be a time
when i will stop
go inward
think of my family and others
yes i always tear up
then
i will move forward
to do what you have to do to make things better

join us or do your local walks

my walks

Alzheimer's Texas Logo
alzheimers texas williamson county walk september 23rd


santa barbara walk to end alzheimers october 28th

the organicgreendoctor


Wednesday, September 20, 2017

alzheimers news-26 weeks in

ALZHEIMERS NEWS-26 WEEKS IN
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today marks the 26th week into the biogen aducanumab study
for hopefully slowing down this disease
for me for now if i didnt get the placebo

for the rest of you if this stuff actually works
it will be available to you eventually

eg those of you who have  matching dna to mine
this may be a drug you will get
some of you even before you have symptoms

thats where all this is heading

this 6 month testing today is important
for this drug this infusion to work
it has to do two things

first   it has to remove the bad beta amyloid from the brain
and
keep new amyloid from being deposited

second   the memory testing has to show no change or
an improvement in memory

this second one has to happen or this stuff isnt helping
the first one well that happened in everyone who has had this
in early studies

so for me
this is an important day
although i will not ever see the results
but
when the memory tests are done
since i have had enough of them
and
have actually administered them to folks
i know how i do when i take them

first
they isolate us my wife she and i
like you know when the police isolate suspects
well i guess thats not a good example

they ask her questions about how i am doing
has she noticed things etc
then
they ask me similar questions to compare our answers

we my wife she and i always joke
i do better than she does on some of these

then
its several different memory tests that are done
similar to the moca and mmse that are done in a lot
of doctors office
i scored low 7 years ago but have improved over that time

when all these are put together
they are compared to my memory testing done over 6 months ago

if i got the real stuff they should have improved
if this stuff works
and
if i got the real stuff

Image result for organicgreendoctor
then after lunch
i get the pet scan called the amyvid scan
it tests for the beta amyloid thats accumulated there
the scan on the left above is positive
the scan on the right above is negative

i also decided to do a substudy where they do more pet scans
than on the other study subjects
even though like the memory tests ill never see the results
the more data they can get the better the results are at the end
of the study

so
if this stuff is working if i got the real stuff
then
my pet scan will look better
at the end of the study
it should be all clear

again though
the memory has to not get worse or get better
for this drug to be a success

the amyvid scan uses a radioactive substance to highlight
the beta amyloid in the brain
if its all red like in the initial scan above on the left
then the scan is positive
if its still red after the study is done
then the stuff either it didnt work or you got the placebo

everyone in the study has a scan that is positive at the beginning

if its not red after getting the infusions then it looks like
the scan on the right
it means the amyloid is all gone
thats right its all gone
initial testing in other studies show this stuff removes the amyloid

this is an important visit
as in one year this part of the study ends

when they look at all the results then
if it appears to be working and there are no significant side effects
then
all of us will get the real drug infusions for another 3 years

what i hope is
i got the real drug to begin with and not the placebo
i think i may be getting the real drug based on some of my side effects
then
i hope this stuff really works

help us find a cure

my walks

Alzheimer's Texas Logo
alzheimers texas williamson county walk september 23rd


santa barbara walk to end alzheimers october 28th

the organicgreen doctor