welcome to the organic green doctor blog

i am a family physician who was diagnosed with
early mild cognitive impairment(mci) amnestic type on december 21, 2010
this is a precursor to alzheimers disease
because of this diagnosis i have opted to stop practicing medicine
this blog will be about my journey with this disease
please feel free to follow me along this path
i will continue blogging on organic gardening, green living,
solar power, rainwater collection, and healthy living
i will blog on these plus other things noted to be interesting

Friday, December 1, 2017

alzheimers news-i got a 10

Image result for organicgreendoctor
this week i got my 10th infusion of the
biogen aducanumab
well i think im getting the real stuff
i might be getting the placebo

im thinking the real stuff

our last trip took over 3 hours to get there
the last 2 hours was spent stuck a lot in traffic

this time we left at 5am
we mostly avoided the bad traffic on the 405
think austins 35 at its absolutely worse
thats the 405 during rush hour
maybe worse

we made it in over 2 hours
we arrived 2 hours or so before our appointment
which was ok with us
we decided we would rather zoom through traffic
than be stuck in that not moving traffic

we just went on a long hike around the campus
the first we have done
by the time im finished with this study
if i am ever finished
many times they will extend the study more long term
we will know the campus and the area real well

we also save our weekend grocery shopping
since there is a large grocery chain just
across the street from ucla
for those in texas think maybe nicer than
a real nice heb

so we shopped then took a lengthy hike
then on to the infusion center
it seems that every time i go now
things just get more streamlined

i arrive by 1000 am and i am out of there before 100pm

i am now at the point of the infusions where
i just get checked in
see the research doctor
wait on the infusion to be processed
they do the iv and hook it up
it runs in over a hour then they flush the iv with saline
for 15 minutes then im out of there
no labs or other testing
thats the way it will usually be from now on
except for the annual visit coming up in march
the 6 month visits

in september 2018 i will have the final visit for the
first phase of this study
ill get the last infusion of the mystery stuff
is it real or not
if i opt to i can do another 42  months of infusions
the real guarantee you gonna get the real stuff infusions
i want those for sure

i see in the future this little dim light thats aflickering
i see the hope light way out there
ill know for sure im getting the real stuff

one thing i have noticed after this infusion on tuesday
is a persistent headache that is requiring acetaminophen
twice a day to control

headache is a good thing
it means i might be getting the real stuff

being a apoe 4/apoe4 genotype i am more likely to have
small micro bleeds where the bad ass beta amyloid is removed
which is the usual cause of the headaches

heres hoping thats why

also if im getting the real stuff
in late 2018 when they do my amyvid pet scan
the pet scan for the bad ass beta amyoid
remember it had to be positive to get in this study
if i am getting the higher dose stuff
then my scan will be negative or almost negative
for the bad ass beta amyloid

of course like i have written before
i will never get to know if i was getting the real stuff
aducanumab the first 18 months of the study
i will never get to see any of my amyvid pet scan results

i can live with that
long as this stuff slows it down

as a reward on tuesday
we elected to leisurely drive the pacific coast highway
thats the hwy one from los angeles back to santa  barbara
it goes through the pacific palisades then malibu
then through mostly almost uninhabited areas

i found it relaxing as my wife she drove
so i could do all the sightseeing without running off the road

rank this visit
a 10 for sure

the organicgreen doctor

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