welcome to the organic green doctor blog

i am a family physician who was diagnosed with
early mild cognitive impairment(mci) amnestic type on december 21, 2010
this is a precursor to alzheimers disease
because of this diagnosis i have opted to stop practicing medicine
this blog will be about my journey with this disease
please feel free to follow me along this path
i will continue blogging on organic gardening, green living,
solar power, rainwater collection, and healthy living
i will blog on these plus other things noted to be interesting

Monday, August 14, 2017

alzheimers news-in memoriam

Image result for organicgreendoctor
i thought about these two guys a lot last week
both were from arkansas

one was my brother joe who died 4 years ago
in the final stages of alzheimers disease

here is the blog i wrote about him after his death
he was the mirror i looked into
i saw myself
knowing that this is where i will be sometime in
the future
when i dont know
im doing what i can to slow it down

here is the blog

Image result for glen campbell
the other person
also had that same smile
it was glen campbell
who died last week in that final stage of alzheimers disease

now i have read some criticism of his family
sending him on his tours
when he struggled so much at times trying to remember his lines
he was doing what he loved to do
he was able to do it longer than most would have

may he rip
when you get to that final stage of this disease
death brings peacefulness
to the person
their family

hopefully they are at peace

this last week i had my first visit at ucla
the worse part was the traffic
its like worse than than the worse austin traffic

i had to undergo reevaluation and reintroduction to
the aducanumab study
i am able to just pick up where i left off at ut southwestern

i am about the fifth one in the aducanumab study by
biogen here at ucla

i chose ucla instead of a private neurology group
since i wanted the connections to a research facility
in case i need to be in other studies in the future
i have found it makes a difference knowing the folks
knowing what new stuff is out there
when it happens
it will be happening here at ucla

they have the mary easton alzheimers disease center here
that does the different research
eg they are also doing one of the bace inhibitor studies
that will probably benefit folks who have no symptoms

they could be used like the statin drugs are being used
to prevent stroke and heart attacks
these bace inhibitors may help slow down or prevent alzheimers
time will tell on that one

the aducanumab study that i am in
has more promise for us with symptoms
although if it works it will probably be given
with the bace inhibitor before folks
develop symptoms
so i went down to the infusion center
got all hooked up again
took my two hours it took to get all set up
get in my infusion #6
then out the door into the throngs of the traffic

12 more to go until they put everyone
placebo and real drug on the real drug for another 3 years
then soon after we will find out if this study really works

more blood work and an mri of the brain at ucla in two weeks

so far
i have just some daily fatigue i experience
thats hard to separate whether its the infusions
or my aricept (donepezil) or my sleep issues or my chronic iritis
i am hoping its my infusions
since that would mean i got the real deal stuff
not the placebo

time will tell

i also volunteered for a substudy of this one
which does extra amyvid pet scans for the
bad stuff beta amyloid
to see if it really all got cleared out after a year
that is
if i got the real stuff

however i will never know if i got the real stuff
this first 18 months
thats part of the deal
they will know but i wont

we need financial support to fight this disease
emotional support to deal with it

join us as we walk this year

txalz walk
we will be doing the
alzheimers texas walk in georgetown texas
on saturday september 23rd
team name is organicgreendoctor

yes we will be in georgetown for the above walk
as we walk with our austin friends and family
do join us
come say goodbye to us

i also will have a team in the
santa barbara walk to end alzheimers 
on saturday october 28th
team name is organicgreendoctor.com

join us

the organicgreen doctor

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