welcome to the organic green doctor blog

i am a family physician who was diagnosed with
early mild cognitive impairment(mci) amnestic type on december 21, 2010
this is a precursor to alzheimers disease
because of this diagnosis i have opted to stop practicing medicine
this blog will be about my journey with this disease
please feel free to follow me along this path
i will continue blogging on organic gardening, green living,
solar power, rainwater collection, and healthy living
i will blog on these plus other things noted to be interesting

Friday, October 14, 2016

alzheimers news-its time

briefly here is a quick version
of my story
with possible alzheimers disease

i had a normal memory test 8 years ago while applying for
long term care insurance
when i volunteered to be in the normal control group of
the large alzheimers study called adni
it was found that i had short term memory loss
diagnosed as mild cognitive impairment amnestic type
thought to be the precursor of alzheimers disease
some think it is early alzheimers disease

i quit work because of the diagnosis
and was placed on aricept (donepezil)

i reentered the adni alzheimers study in the
mild cognitive impairment group
finishing that study last year

since retirement i got aggressive with my health
controlling all my health parameters like sleep blood pressure
cholesterol changing to a 90% vegetarian diet
staying active physically and mentally
staying busy and happy

i was found to have low b12 and low vitamin d3
and high homocysteine
i take b12 and vit d3 and folate and b12 to correct these
abnormal labs respectively

so now after 5 years my memory is back to normal for my age

i also take 12 supplements a day based on a study from ucla
that showed folks got better on it
not proven yet in a larger study but not disproved either

so doing all this something made me better
maybe the aricept (donepezil)
maybe the supplements
maybe correcting my abnormal labs
maybe getting aggressive with my health

my opinion
it was all of these together

will it all keep me from getting full blown alzheimers disease
if i have it
probably not
its just delaying things for awhile
hopefully a long while

the things that make me think this may have been alzheimers
a normal memory test then 3 years later its not normal
a strong strong strong family history of alzheimers disease
both parents and two siblings
an apoe 4 double gene that increases the risk for getting alzhiemers disease
a spinal fluid analysis showing the bad beta amyloid level and the
tau protein levels are abnormal

so where am i in this quandary
do i or dont i

there is a test called
the amyvid pet scan
it will show if a person has the accumulation of beta amyloid in the brain
that is the hallmark of alzheimers disease

so if i have the scan done

if its normal
its not likely i have alzheimers disease
if its negative i will stop my aricept (donepezil) and move on with my life

if its positive
it doesnt mean i have alzheimers disease as other things can
cause the accumulation but usually its alzheimers disease
adding up all my other risk factors
if its positive
i have alzheimers disease

so its time
next tuesday

i go up to the alzheimers disease center at ut southwestern
in dallas for my annual evaluation

also there are new studies all treatment ones that are starting up there
sadly to say
i probably will not qualify for them
i am either too normal or too abnormal for them
all of them do the amyvid pet scans
so if im in the study i will get a scan and unlike the adni study
i would get the scan results

my guess i will not qualify for them

another study about to start soon up there
is the ideas study sponsored by medicare
to determine if the amyvid scan is useful in private practice
i say yes
its used already in private practice all the time

when i look at the criteria for the study
it looks like i qualify
based on using the scan to determine
whether i need to be on medicine
how i need to plan my life if its positive

the problem is i have been waiting for all these studies
now for 3 years hoping i qualify for them to get an amyvid pet scan
for free
at the same time helping advance knowledge about the disease
if i qualified for a treatment study
actually getting treatment years before it got onto the market

so back to next tuesday

i will ask
do i qualify for a treatment study
no they say
i will ask
when is the ideas study starting
if its not before the end of the year
in my hand are two orders for the amyvid pet scan
one here in austin
the other at ut southwestern

all i have to do after tuesday
is schedule it
get the results not long after that
i will know where i am with all this
ill plan my life accordingly
stopping my aricept if its negative
but continuing everything else i am doing

i will look closely at my future
if its positive
continuing the aricept (donepezil)
then i and my wife she need to be more aggressive
about decisions for our future

its time

the organicgreen doctor

No comments:

Post a Comment