yesterday
i went to the alzheimers disease center at ut southwestern to get my
third infusion of the aducanumab drug from biogen
if it works or if it partially works
it will slow down the disease some
yesterday
i discussed with the center that i would be moving to santa barbara soon
they said i may have the option to switch to a site in california that is
participating in the study
eg like ucla
so
we are thinking about changing if its approved by biogen
if not
we plan to continue going to dallas each month to get the infusions
this study
for me
is too important not to do all i can to get this drug
it will be the only chance i have
to get something to help slow down the disease
since
when the drugs that are in the works now get here
my disease may be too far to take something to stop it
ie
now is my time
i have to maximize things
all this made me think of
those who have contacted me in the last month
via this blog or after my talks or in random encounters
the jest of what that say is
my family has alzheimers disease
i dont have any symptoms
i know i am going to get it one day
can i get in a study like yours
my answer is yes
for research folks are classified as
prodromal or prealzheimers-they have normal memory but have a positive
scan called amyvid for the beta amyloid and positive spinal fluid
levels of beta amyloid and tau
this means they will probably develop alzheimers disease
mci or mild cognitive impariment due to alzheimers disease-they have
mild memory loss and these biomarkers ie postive amyvid scans
and positive spinal fluid levels of beta amyloid and tau proteins
alzheimers disease-they have more advanced memory loss and their
biomarkers are positive
then
alzheimers disease is either mild moderate or severe
or early mid or late
most of the new treatment studies are looking at
prodromal
mci or mid cognitive impairment
mild alzheimers
these are the three levels that may benefit the most since
there is not as much damage done yet in the brain
so the treatments may work to slow down or if we are lucky
to stop the disease
so those of you who have asked me
is there one of these studies i can get in to get treatment
even though i am not having symptoms
yes there is
you have to willing to know that you will probably get alzheimers
most of my readership lives in arkansas texas california
so if you live in these states
its in your family
you want to know if youre next
you want to be proactive and get pretreated
then
heres the links below for each state
there are 3 companies
there are others that are on the way
lilly solanezumab-the study is called A4
genetech/hoffman-la roche crenezumab-its the drug that was on
60 minute and pbs recently
biogen aducanumab-this is my drug it will be doing studies soon on
those with prodromal alzheimers disease
you can go to www.clinicaltrials.gov to search for these studies
or
click on the links below
in arkansas
look under arkansas near the bottom
there are three sites
jonesboro little rock and fayetteville
crenezumab study
in california
look under californa near the bottom of the page
there are multiple sites
crenezumab study
solanezumab study or A4
in texas
look under texas near the bottom of the page
there are multiple sites
crenezumab study
solanezumab study or A4
if you are interested in being proactive
call the sites even though they may be listed as
not recruiting yet
sometimes they really are
good luck
rain or shine
everything is for sale
unless its a heirloom item that stays in the family
or
if the new homeowner has bought it
or
if we can stuff in our two cars
if you are a lover of chicken stuff or donald duck stuff
there is a lot to pick from
everything is priced to sell
here is the link to our rain or shine moving sale on saturday may 20th
country n moving sale
the organicgreen doctor
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