welcome to the organic green doctor blog

i am a family physician who was diagnosed with
early mild cognitive impairment(mci) amnestic type on december 21, 2010
this is a precursor to alzheimers disease
because of this diagnosis i have opted to stop practicing medicine
this blog will be about my journey with this disease
please feel free to follow me along this path
i will continue blogging on organic gardening, green living,
solar power, rainwater collection, and healthy living
i will blog on these plus other things noted to be interesting

Friday, May 19, 2017

alzheimers news-its near you

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i went to the alzheimers disease center at ut southwestern to get my
third infusion of the aducanumab drug from biogen
if it works or if it partially works
it will slow down the disease some

i discussed with the center that i would be moving to santa barbara soon
they said i may have the option to switch to a site in california that is
participating in the study
eg like ucla

we are thinking about changing if its approved by biogen
if not
we plan to continue going to dallas each month to get the infusions
this study
for me
is too important not to do all i can to get this drug
it will be the only chance i have
to get something to help slow down the disease
when the drugs that are in the works now get here
my disease may be too far to take something to stop it

now is my time
i have to maximize things

all this made me think of
those who have contacted me in the last month
via this blog or after my talks or in random encounters

the jest of what that say is
my family has alzheimers disease
i dont have any symptoms
i know i am going to get it one day
can i get in a study like yours

my answer is yes

for research folks are classified as
prodromal or prealzheimers-they have normal memory but have a positive
          scan called amyvid for the beta amyloid and positive spinal fluid
          levels of beta amyloid and tau
          this means they will probably develop alzheimers disease

mci or mild cognitive impariment due to alzheimers disease-they have
          mild memory loss and these biomarkers ie postive amyvid scans
          and positive spinal fluid levels of beta amyloid and tau proteins
alzheimers disease-they have more advanced memory loss and their
          biomarkers are positive

alzheimers disease is either mild moderate or severe
          or early mid or late

most of the new treatment studies are looking at
mci or mid cognitive impairment
mild alzheimers

these are the three levels that may benefit the most since
there is not as much damage done yet in the brain
so the treatments may work to slow down or if we are lucky
to stop the disease

so those of you who have asked me
is there one of these studies i can get in to get treatment
even though i am not having symptoms

yes there is
you have to willing to know that you will probably get alzheimers

most of my readership lives in arkansas  texas  california

so if you live in these states
its in your family
you want to know if youre next
you want to be proactive and get pretreated
heres the links below for each state

there are 3 companies
there are others that are on the way

lilly  solanezumab-the study is called A4

genetech/hoffman-la roche  crenezumab-its the drug that was on
          60 minute and pbs recently

biogen  aducanumab-this is my drug    it will be doing studies soon on
          those with prodromal alzheimers disease

you can go to www.clinicaltrials.gov to search for these studies
click on the links below

in arkansas
look under arkansas near the bottom
there are three sites
jonesboro little rock and fayetteville

crenezumab study

in california
look under californa near the bottom of the page
there are multiple sites

crenezumab study

solanezumab study or A4

in texas
look under texas near the bottom of the page
there are multiple sites

crenezumab study

solanezumab study or A4   

if you are interested in being proactive
call the sites even though they may be listed as
not recruiting yet
sometimes they really are

good luck

our moving sale is happening tomorrow
rain or shine
everything is for sale
unless its a heirloom item that stays in the family
if the new homeowner has bought it
if we can stuff in our two cars

if you are a lover of chicken stuff or donald duck stuff
there is a lot to pick from

everything is priced to sell

here is the link to our rain or shine moving sale on saturday may 20th
country n moving sale

the organicgreen doctor

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