welcome to the organic green doctor blog

i am a family physician who was diagnosed with
early mild cognitive impairment(mci) amnestic type on december 21, 2010
this is a precursor to alzheimers disease
because of this diagnosis i have opted to stop practicing medicine
this blog will be about my journey with this disease
please feel free to follow me along this path
i will continue blogging on organic gardening, green living,
solar power, rainwater collection, and healthy living
i will blog on these plus other things noted to be interesting

Tuesday, January 10, 2017

alzheimers news-next

i promised to document my journey
a long journey to slow down the possibility
of having alzheimers disease

i am sure someone somewhere has done this before
i am probably not the first

i do have the unique view though of

having multiple family members who have or have had
alzheimers disease
including cousins and aunts and uncles and grandparents etc

having as a physician treated some alzheimers patients
although as i say
knowing what i know now i didnt do a good job

having maybe alzheimers disease
if i do
i am past the presymptom stage called prodromal alzheimers
now into the phase of early mild cognitive impairment
possibly due to alzheimers disease

i am doing what i can to slow things down
as soon as i was diagnosed
i got aggressive taking care of my health
i got aggressive controlling blood pressure cholesterol etc
i also added recommended supplements that may help
although not proven to work they havent been disproved yet

i watch as much of the new drug treatment studies that
i can find
watching for one that is promising
that may show up in time to help me
knowing what i know
looking at family who have had the disease
that old clock is ticking
i want one that will slow down father time

a few years ago
i spotted one that i have kept my eye on
i even skipped a amyvid pet scan for beta amyloid in the
study i was in
knowing it might disqualify me for the new treatment study

the study
biogen aducanumab study
an antibody was isolated from old folks who dont get alzhemers
it is
a monoclonal anitbody that grabs the bad beta amyloid from
the brain
it actually removes also the plaques from the brain as well as
the bad beta amyloid in the brain
the beta amyloid scans going from abnormal to normal
in early studies
the study subjects memory improved

so as i look at what is on the horizon
there is a lot out there
this for me is the one

so there are four steps or hurdles i have to jump

step one
passing the review of all my medical records
by the research nurse and the chief investigator

step two
undergoing lengthy memory testing as well as my wife she being
interviewed plus a ton of blood that got drawn then
having a thorough neurological exam
5 hours total
got the word yesterday

am i ever elated
you bet

step three
more memory testing and my wife she answering questions
then a mri of the brain
looking for things that are wrong upstairs like tumors strokes masses
brain shrinkage etc
all total 5 more hours of testing
to be done
in the next two weeks

step four
if i pass the above
i finally will get the beta amyloid pet scan brain scan
that i have been waiting for for months
if its positive
im in the study
if its negative
im one lucky guy

then if i pass or should i say flunk this step
im in
then its on to

step five
infusions monthly of the aducanumab antibody against beta amyloid
for maybe 4 1/2 years

im stoked
im ready
game on

i got next

the organicgreen doctor

No comments:

Post a Comment