welcome to the organic green doctor blog

i am a family physician who was diagnosed with
early mild cognitive impairment(mci) amnestic type on december 21, 2010
this is a precursor to alzheimers disease
because of this diagnosis i have opted to stop practicing medicine
this blog will be about my journey with this disease
please feel free to follow me along this path
i will continue blogging on organic gardening, green living,
solar power, rainwater collection, and healthy living
i will blog on these plus other things noted to be interesting

Friday, August 6, 2021

alzheimers news-clinical trial participants are needed

at the end of my preliminary interview for the being patient interview that i will do on monday august 9th at 1200 noon pst i was asked
is there anything you would tell folks listening today

byi thats a common question asked when i am on panels or in q and a sessions

one of my answers is
we desperately need clinical trial participants for alzheimers research
without these clinical trial participants none of the research would be done
it would only be done on animals

my drug aduhelm (aducanumab) clinical trials were and are being done on around 3000+ folks worldwide
it took a lot of people being screened to find those 3000+ participants 

without these participants this drug aduhelm (aducanumab) would not be available and approved by the fda

the reason i first volunteered for a study was because my mother and younger brother died from alzheimers
my father probably had it
my older brother probably has it 
i also figured i would probably get it one day 
i volunteered to be in the normal control group of a study 
during the evaluation which was more thorough than what you would have gotten in a private neurologists office i was found to have mci or mild cognitive impairment thats turned out to be due alzheimers disease

had i not volunteered i probably would have advanced in my symptoms and eventually would have sought out an evaluation

i was able to know early on about my diagnosis and was able to aggressively take care of my health and plan my life
something i did seemed to slow things down

volunteering for a clinical trial early on in my disease probably has given me a few years of normality 

it also has now allowed me to be receiving the new alzheimers drug aduhelm (aducanumab) months to years before most americans can access it
its fda approved now but the system isnt geared up to start giving the infusions
it will be months before medicare will make its final decision on if it will cover this drug and if it does who will be allowed to get it

in alzheimers time thats a long long time

im now getting this drug
i will get my 10th dose of the drug in two weeks
had i not got 18 months of placebo i would be getting my 28th infusion

so ive gained time in my fight against alzheimers
a disease where time is the essence in slowing it down

we desperately need clinical trial participants in our alzheimers studies
as well as other disease studies

we cant do this without you

see clincialtrials.gov to find a study near you
just click on the link 
type in alzheimers disease
youll find all the available studies in the united states

aduhelm (aducanumab) will soon be recruiting for a long term study required by the fda so it will be available to those accepted in the clinical trials
you have to have a diagnosis of mci or early alzheimers disease

biogen has another drug called lancemab or ban2401 who is recruiting now for participants
it probably works better than aduhelm (aducanumab)
its anticipated to be approved in 3-5 years

lilly has a new drug called donanemab that is also recruiting now for participants
it probably works better also 
its also anticipated to be approved for use in 3-5 years

all three of these drugs are going to be studied in folks who are prealzheimers 
thats folks with positive blood test for alzheimers (only available in research studies) or a positive amyvid amyloid pet scan or a positive spinal test

so if you think you are at risk for alzheimers and want to know you have it and if you do want to get treated then look at these studies which will show up on cliinicaltrials.gov soon

we need your help to find a cure


here is the link to rsvp for my being patient interview on
monday august 9th at 1200 noon pst

you have to provide a name and email then click you are live person 
then you will receive an email with the link to the interview
mine showed up the next day in my email

there also will be a youtube link to the interview you can watch later if you miss the live interview

later when its available on youtube i will also post the link here and on facebook

the organicgreen doctor

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