welcome to the organic green doctor blog

i am a family physician who was diagnosed with
early mild cognitive impairment(mci) amnestic type on december 21, 2010
this is a precursor to alzheimers disease
because of this diagnosis i have opted to stop practicing medicine
this blog will be about my journey with this disease
please feel free to follow me along this path
i will continue blogging on organic gardening, green living,
solar power, rainwater collection, and healthy living
i will blog on these plus other things noted to be interesting

Wednesday, September 22, 2021

my story revisited #104-its called subjective cognitive decline


if you think you have a problem then you might just have a problem with your memory

dr daniel gibbs wrote in his book a tattoo on my brain how he had subjective cognitive issues
he had memory testing that was normal though but he went ahead and stopped practicing as a neurologist since he felt like he was at the beginning of the start of alzheimers disease

it turns out he was right after all
he has alzheimers disease and it now shows up on memory testing and his amyloid pet scans and his tau pet scans are all positive

it was only because he was superacutely aware of his memory issues that he was able to recognize he had a problem

his book is a  must read if you or your loved ones are in the alzheimers world now

he tells you what its like to have the disease early on 
he views it as a physician a researcher a family member and now as a patient
his story is similar to mine also

if you think you might have memory issues then get evaluated early on
consider finding a research study to volunteer in 

he did
i did
you should also

as you read the blog below note the video interview is no longer available

nowadays those with subjective memory issues would probably end up being prealzheimers or prodromal alzheimers
normal memory testing with positive biomarkers for alzheimers like blood tests and pet scans and spinal fluid tests

there are several treatment studies starting or will be starting for these prealzheimers patients using drugs like my drug biogens aduhelm (aducanumab)

an aside here
i have a mri scan next week at ucla to make sure i dont have aria or microbrain bleeds
so far i have no symptoms
in 3 weeks i get my 5th infusion of aduhelm in the restart biogen adhuhelm clinical trial making a toal of 11 infusions of the real drug aduhelm and 18 infusions of placebo at the beginning 
if you think that there is a problem
well maybe there is a problem

its called subjective cognitive decline
it may be the first clinical indicator of
alzheimers disease
its the first sign of alzheimers disease

its the self reported perception of memory or
cognitive problems

at the alzheimers association international conference
in boston this week this was one of the topics discussed
with special interest to clinicians

if you can find ways to identify people early real early
get aggressive with treatment early maybe you can make
a difference in whether the disease progresses at all or
maybe make it less severe

right now you have aricept (donepezil) and namenda that can
be used initially or later on in the case of namenda
get aggressive with treatment of the blood pressure cholesterol
diabetes obesity sleep disturbances depression anxiety
and improve exercise diet and mental activity

this early subjective cognitive decline combined with new
testing with blood tests and amyvid pet scan allows for an
early diagnosis to be made
new treatments can be started early on these patients

also these patients can be used for some of the research studies
on new drugs that will probably work better if started early on
the disease

there are a lot of social and psychological factors to consider
of course in this early detection

the study im in the alzheimers disease neuroimaging initiative
has started a study of patients who have subjective cognitive
decline and are following them with the same tests that im having
done in the mild cognitive group

im glad to see this research on subjective cognitive decline
because if i didnt have some changes on my neuropsych exam
and spinal fluid protens i probably would be in that group

here is a link to a nbc story on alzheimers disease with
maria shriver and dr nancy snyderman
this video talks about why early detection to this patient is
click here to watch the video
if you think it you may have it
get evaluated

read dr daniel gibbs book a tattoo on my brain to know what its like to have this disease early on before others notice it
so much of what i have experienced is in his book

get tested early on

the organicgreen doctor

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